.

By Cam Lucadou-Wells

Jack Ottens is a brilliant boy who can’t get a schooling.

Despite a life-threatening affliction, the Berwick 11-year-old is part of MENSA and has an insatiable curiosity for the stars, maths, insects and the natural world.

He has even submitted to the CSIRO to name an unnamed fly. He named it after his family – antisella ottensorum.

He wants to learn and be a part of school. For the past six years, he and his determined mother Christine have been fighting for it.

Jack lives an arterioveinous malformation (AVM). When it ruptures, it can lead to a potentially fatal deep brain bleed.

In 2016, the AVM twice ruptured. The first time his life was saved when rushed to hospital for emergency brain surgery, Ms Ottens said.

He remains at risk of a catastrophic brain bleed.

The family is exploring a potential lifeline of a refined radiation treatment, possibly interstate or in the US.

“The way Jack copes with it is amazing,” Ms Ottens said.

“I don’t allow him to be a victim. We want him to have as normal life as possible.”

However, Jack is often too ill to go to Berwick Chase Primary School – in between his weekly medical appointments.

In the meantime, he is left to learn largely by his own devices at home. He gets tuition for just one hour a week through the state-provided Visiting Teacher Service.

The family has unsuccessfully applied for more intensive assistance such as a teacher’s aide under the Program for Students with Disabilities.

Confoundingly, the criteria covers a “significant health impairment” but only those that require “regular paramedical support”.

The department has found Jack’s illness is not significant enough.

“I don’t think they want to approve anything for Jack because it opens up the floodgates,” Ms Ottens said.

“Instead of spending money on investigations and reviews, they could come up with a plan for him.”

Ms Ottens says even one hour of tuition a day would make a difference for the fast-learning student. It will help take his mind off his AVM and to keep up in the classroom.

She has pleaded for intervention from the Department of Education and Training as well as Education Minister James Merlino.

Both have sent her letters informing her of the Department’s commitment to inclusivity.

A Department of Education and Training spokeswoman told Star News the department and school staff would continue to work with Jack’s family to support his learning goals.

“When his health allows, Jack is supported by the school and the Department at his home to enable him to access the curriculum taught by his teacher at school.

“The school is working with the family to progress an application for evaluation in this year’s annual Program for Students with Disabilities round.”

Ms Ottens meanwhile says Jack is being set up to fail.

“The Education Department are putting it on the children to learn for themselves, on the families who are financially under stress and taking him to appointments.

“Like any other child, he has dreams of what he wants to do.”

To help fund Jack’s medical needs, the family has set up a crowdfunding page at https://www.gofundme.com/jackottens

  • Christine Burns-Ottens

    Some corrections – 1. Jack was given the honour of naming the fly – he didn’t apply for it. 2. The Visiting Teacher does not tutor Jack. Her role is to help organise for work to be sent from school and to help Jack establish a routine to do it. Note – the Visiting Teacher has only been onboard for a few months. 3. The school was not ALLOWED to apply for an aide for Jack! This despite Judith Graley’s office instructing them to do so. The Regional Office said that he did not fit the criteria. 4. The Department has been asked numerous times over the past more than 6 years by myself and the school to assist and they have never had any interest in doing so. I reject the comment that they have worked with myself and the school with Jack’s situation. 5. There is no conflict with the school. They may have been able to do a bit more but they have always been in Jack’s corner. 6. There is no access to teaching from the home. 7. The so-called application for evaluation for the Program for Students with Disabilities is the just department attempting to save face now this has gone public. Jack was ineligible last month so why is he eligible now? We fully expect that any application will be rejected on the grounds that he does not fit the criteria. It should also be again noted that this has been an issue for what is now the 7th year and the Department has had absolutely NO interest in helping Jack until they knew this article was coming out. This child has around 200 medical appointments a year with well in excess of 500 recorded absences the frequency of which increases each year. He now has two life-threatening medical conditions and suffers from 4 Acquired Brain Injuries.

    Like or Dislike: Thumb up 0 Thumb down 0

  • Christine Burns-Ottens

    To add to my previous comment – Home-Based Education Support Program – rejected, Distance Education – couldn’t keep up with the course work so would be ejected, Program for Students with Disabilities – advised doesn’t fit the criteria.

    Like or Dislike: Thumb up 0 Thumb down 0

Your first stop before buying a home. View the whole picture.

More News

A Berwick driver was intercepted by police after detected travelling at 128km/h in an 80km/h zone on Berwick-Cranbourne ...

 Presented by Royal Life Saving Society Australia, YMCA Casey Recreation and Aquatic Centre (RACE) were one of six individuals ...

Writers Victoria is coming to the City of Casey for the next three years to inspire and support Casey residents ...

 The Kokoda Track has been on Berwick’s Michael Molloy and David Mounsey’s bucket list for ...

 Interested in health and fitness? Market Day at Amberley Park Shopping Centre in Narre Warren South won’t ...

 Dr Paul Hemming AO has announced his retirement from his role as Chancellor of Federation University Australia. Dr Hemming ...

Latest Sport

SOUTH EAST FOOTBALL NETBALL LEAGUE REVIEW – ROUND 10 Defence has been the cornerstone for Berwick’s success, it’s made them ...

The Berwick College Basketball Academy is making a name for itself as it racks up impressive wins in tournaments across ...

The VFL Tigers are heading to Beaconsfield. Those who want a great day of football action will want to get ...